Awareness is critical in making a difference for causes which are lacking support, public understanding and research. The article in the link below explains why the grass-roots actions of people like us can turn the tides for people who are dealing with illnesses like ME/CFS and other Neuro-Immune Diseases (NID’s).
May 12th has been an International Day for Awareness for Chronic Immunological and Neurological Diseases (CIND). The diseases/disorders which fall within the umbrella of CIND include Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM), Gulf War Syndrome (GWS), Multiple Chemical Sensitivities (MCS) and some Autism Spectrum Disorders (ASD).
This awareness day originated in 1992 (it’s also sometimes called World ME Day &/or Int’l Fibromyalgia Awareness Day, and other variations). I’ve only become aware of the event, myself, in the past few years, even though it’s existed for over two decades (think maybe it needs more help letting people know about it?!).
Please visit the links at the top of this post and below (& pass them on &/or share this post) to learn more and find out about other easy things you can do to make a big difference for the people who have these illnesses: http://ow.ly/1W5LMQ
You can also follow May 12th – International ME/CFS & FM Awareness Day, on Facebook http://ow.ly/1W5Mfd …and @May12th, on Twitter.
P.S. Since Mother’s Day (in the USA and some other countries) and Int’l Awareness Day are coinciding, this year, my thoughts go out to the mom’s who have one of those things …as well as to the women who have it who may have had to give up their dreams of motherhood due to illness, and the moms who are caring for children who have a neuron immune disease like ME/CFS. I remember reading several posts/news-articles about moms who’ve been by the bedsides of some of the most seriously-afflicted/sometimes bedridden children (some of whom died). One mom lost her daughter after being told there was nothing physically/medically wrong with her (only to find out, after her autopsy, about the massive infection involving her basal ganglia, if I recall correctly); and another mom’s teen son died of heart issues of some sort. Other mom’s have been unable to be the mother’s they want to be to their children because they’re either in bed or on the sofa the majority of the time after pushing themselves through the fatigue and other symptoms to do small “normal” things for just a few minutes/hours or days. I’ve gotten to know several, on & offline, and it’s heartwrenching what many have been through: One mom I just recently ran across had escaped an abusive marriage (when both she and her daughter had been beaten up), only to have to resort to living with relatives who are emotionally/verbally abusive, living well below the poverty-line on Social Security, continually running out of food and not being able to eat what’s available at the food banks (and having all of those huge additional stressors make her illness worsen, in turn). She’s now also has cancer, and is dealing with all of the additional symptoms and challenges which come with that. Another article I recently read spoke of the struggles of parents with ME/CFS who are in the position of having to also help care for their own parents or spouses ‘though only functional, themselves, for maybe 2-4 hours per day, to varying degrees, and really in need of caregivers of their own. Thoughts continue to go out—today and every day—to all those who are dealing with these and so many other illness and disability issues. But especially, today, much love goes out to the moms and would-be mothers-at-heart who have ME/CFS and other CIND’s/NID’s.
Note: Portions of this post &/or the link above are also available on Facebook and Twitter, for your awareness-spreading convenience: