Chiari Awareness Day (Sept. 20, ’08)


 

Today (September 20th, 2008) is:

 

CHIARI AWARENESS DAY

 

 

Chiari Malformation (Arnold-Chiari)  is a serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms. 

 

 

 

  • Chiari affects more than 300,000 people in the US; & 30% of children born with spina bifida are also born with one.

 

  • Chiari causes a wide-ranging, diverse set of symptoms – 95% of patients experience at least 5 different symptoms.

 

  • CM is diagnosed using combination of MRI, neurological exam, physician’s judgment, and other tests; patients often go 5 or more years before being properly diagnosed – 57% had at one time been told by a doctor they were suffering from a mental or emotional problem.

 

  • Many patients undergo serious brain surgery in an attempt to stop symptoms from progressing.  Surgery can improve symptoms for about 80% of patients, but fails about 20% of the time.

 

 

Learn more about Arnold-Chiari Malformation & related disorders:

 

Conquer Chiari:  www.conquerchiari.org

 

American Syringomyelia Alliance Project, Inc.:  www.asap.org

 


Care-Aware: http://care-aware.spaces.live.com


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